Many of you know my mother died on November 26 after having Alzheimer’s for more than eight years. She died by inches. As I have written previously, my mom’s leaving this world was a long, protracted journey that took everything from her and also exacted a great toll on her small family left behind.
My father also had Alzheimer’s and so did an uncle and aunt. Both of my grandmothers had some form of dementia — probably Alzheimer’s.
I despise this horrible disease. It makes me feel totally helpless. Of course, I write about the subject, and I give money and have done walks. Yet, I feel as though I’ve not really made much of a difference.
I want to do more, but what can I — a solitary person — do to help eradicate Alzheimer’s? Read on to find out what I’m doing and what you can do as well.
I would like to disclose that I am being compensated by the
Banner Alzheimer’s Institute for writing and sharing this post.
Recently, I was contacted by the Banner Alzheimer’s Institute with a request that I take part in a phone briefing about their Alzheimer’s Prevention Registry. The registry exists to connect Alzheimer’s research participants for studies across the country. I jumped at the chance to join and am now happy to be sharing it with you.
Here is what you need to know:
1) Alzheimer’s disease is not a normal part of aging. There is no cure, no survivors. It is devastating to the victim and the family. While other diseases, such as death from heart disease and some cancers, have dramatically declined, Alzheimer’s is reaching epidemic proportions.
2) Public policy is beginning to change and we are embarking on a new era of Alzheimer’s research. Finally, more money and effort is being focused on finding a cure and/or ways to slow the disease.
3) The time is now and your help is needed. Researchers need a pool of 250,000 participants to study — people over the age of 18, from all races and ethnicities and those without any symptoms of memory loss. They need people with or without a family history of the disease.
4) Registering is easy at www.endALZnow.org and only takes a few minutes. You then become part of a growing online community that will keep you informed about research and progress.
5) You will be asked to participate in some way. Many studies might be as simple as filling out research questionnaire’s online, while other participation might be more involved, such as a brain scan or taking part in a clinical trial. However, you are not obligated and you always have the choice of participating or not.
6) The time is now. Researchers cannot conduct their research unless they have participants to study. Please sign up today at www.endALZnow.com and then share it with others on social media.
The memories you save, might just be your own.
I’m so happy to write this post. I would be thrilled to take part in a research study this coming year or in the years ahead. To think that I might play a tiny role in curbing this disease makes me feel hopeful that we can actually end Alzheimer’s disease. I’m guessing many of you may feel the same.
Dating Dementia is the creation of Nancy Wurtzel, a public relations professional and sometimes creative writer formerly based in Southern California and now living in her native Minnesota.
Nancy sincerely hopes that people will read her blog posts because she has a lot to say and she will say some of it here.
What would Nancy like to share with you?
“Born and raised in a small town in central Minnesota, I moved to California in my early 20s thinking that I would only stay a year. Flash forward 33 years: I’ve recently left sunny Los Angeles and have moved back to Minnesota to help care for my aging Mom who has dementia. I’m an ‘older mom’ with one wonderful college-age daughter. You will notice that I use a variety of names when I refer to my darling daughter in blog posts — this is mainly to protect the innocent. Recently divorced, I am now looking at the next phase of my life. What will I do to make a living? Will I stay in Minnesota? How do I balance work, parenting, a social life and still find time to exercise? How do I deal with my 92-year-old-mother and her significant memory loss? Can I finally tap into my internal spirituality? And most importantly, will I ever have sex again?”
As you can tell by the lengthy quote, Nancy indeed has a lot to say and she often shares just a little too much (in the third person, of course).
By now you have figured out that this blog is really all about Nancy, and this pleases her to no end!